In Which We Stop by the Letters E and A

(Thankfully this is a much pleasanter alphabetic tour than when we visited the Letter D or the Letter R.)

I am pleased to announce that I have had TWO awards bestowed upon me!  (”Aw, shucks…” she blushes.)  So without further ado (because these are inadvertantly WAY overdue), I would like to explain them, give my own nominations, and importantly, add in an extra stipulation.

Ideally, I would add in some lovingly-crafted paragraphs describing intriguing details as to why each of my nominees so deserved the award.  Alas, I am up against a deadline from a college secretary who needs my handout masters for copying, and we all know that making secretaries annoyed is very bad form.  Instead, I shall aim for a few tantalising adjectives and let you enjoy discovering some new, fabulous blogs!

A black and white graphic with the inscription, "Excellent" at the top, a tilted capital E in the center, and at the bottom, the phrase, "This blog is Rated E for Excellent".

A black and white graphic with the inscription, "Excellent" at the top, a tilted capital E in the center, and at the bottom, the phrase, "This blog is Rated E for Excellent".

So, way back on April 20th, Shiva nominated me for this award, and I somehow missed the whole event at the time. (It’s not the first time I was in the bathroom or where-ever when someone needed to make an announcement — how was I to know?)

The Mommy Project began the award, with the stipulation:

By accepting this Excellent Blog Award, you have to award it to 10 more people whose blogs you find Excellent Award worthy. You can give it to as many people as you want but please award at least 10.

Wow, TEN people.  It’s not that I can’t think of ten great blogs, but rather, how do I choose?  (Plus, I would like to nominate folks whom I’ve not nominated for other awards, and of course, there’s the inevitable issue of finding bloggers that weren’t already nominated…)

My nominations are:

  • Young Female Scientist who frequently kvetches from the lab bench, and often has pithy things to say about the socio-political side of research
  • Annette of Fun With Play-Dough has a wicked sense of the absurd about politics, parenting, and an incredible ability to find strange news items
  • Ms Cornelius at A Shrewdness of Apes whose reports from the circus of high school only sound improbable to non-educators
  • Epi Wonk slices, dices and juliennes absurd epidemiology reporting, and also deconstructs claims in an exceptionally clear manner
  • Elizabeth of Screw Bronze! who ostensibly did not become perilously sick to corner the market on Goth Hello Kitty bandages
  • no-nonsense abfh, who is always thought-provoking
  • the Midlife and Treachery blog; imfunnytoo manages to squeeze an impressive amount of social analysis from events that only seem mundane on the surface
  • Ira of SpeEdChange who’s all about accessibility and advocacy and movies
  • Piss Poor Prof at Burnt Out Adjunct, who is unwittingly providing something of a mentorship by pointing out road hazards
  • the ornery gang at Skepchick who also make me feel not so alone (I know with whom I want to go elbow-lifting)
A statuette of an angel in a strapless blue gown, standing upon a gold-colored wave with the title, "Arte y Pico" curved onto th einside of the wave

A statuette of an angel in a strapless blue gown, standing upon a gold-colored wave with the title, "Arte y Pico" curved onto the inside of the wave

Well, as if that wasn’t enough, on the 4th of July TherExtras nominated me for a really interesting award, the Arte y Pico.  Only I didn’t get any message telling me such.  In fact, it was only because every once in a while I go back and look through my WordPress “dashboard” section that tells me who has linked to my blog, that I discovered that Excavator had also nominated me for this same award, on August 6th.

1. Pick five blogs that you consider deserve this award for their creativity, design, interesting material, and also for contributing to the blogging community, no matter what language.
2. Each award must have the name of the author and a link to his or her blog to be visited by everyone.
3. Each award winner must show the award and put the name and link to the blog that has given her or him the award itself. Award-winner and the one who has given the prize have to show the link of “Arte y Pico” blog, so everyone will know the origin of this award.

My nominations are:

  • The talented Bev at Asperger Square 8 who creates the most amazing satirical products and cartoons
  • Wheelchair Dancer whose dance company #1 on my list for seeing, should our locations ever synch
  • Uphilldowndale whose photographs of daily life and scenery in northern England make me dretfully unhomesick
  • gluten-free girl who makes me wish I spent fewer evenings staring dumbly at the fridge trying to remember what it was I was going to make for dinner
  • Randall of xkcd, who proves that stick figures and cartooning are not incompatible with high concepts and erudite geekitude

All this makes me realise that I need to update my blogroll, but in addition to everything else I have to go to market today, so that’s not going to happen for quite a while.

As for my extra stipulation, it’s this:

WHEN YOU NOMINATE SOMEONE FOR AN AWARD,

SEND THEM AN E-MAIL OR POST A COMMENT ON THEIR BLOG.

So they know.  And don’t have to discover it accidentally, long, long down the road. Thank you.

And, thank you three for the awards, and thank you all for sharing your thoughts with the world by blogging!

The Crystal Ball Crack’d

The Kid recently took the ACT test, which like the SAT, is frequently used by colleges to determine scholastic abilities, and in his case helped place him for which college writing class he needed.  He had to ask his sister what the test was like, and her impressions about its difficulty level.  I could not personally provide any opinions, because I had never taken the ACT or SAT.

I never took them because no one thought I would go to college.

They made massive assumptions about my abilities and my future. So here’s what happened, and something to think about. I welcome you to please post comments, and more links to other positive blogs and sites.

My grades in secondary school grew worse over the years, and I had to re-take a semester in one class (English of all things, which in later years proved to be ironic when I became a freelance writer, with hundreds of items in print).

By this time in my life, my parents had divorced.  My dad lived in another state, and was even more of a non-player in my life.  Alas, my mother had spent years futilely trying to make me more “normal”, from requiring me to learn right-handed penmanship, enrolling me in a “charm school” at the local Sears & Roebucks to improve my feminine graces, and so on.  But as the years wore on, my faults (problems) became more and more apparent.  She no longer described me as “very bright”, but was quick to list all my failures and describe them in damning detail, until I was ready to vomit or pass out from the stress (though I never did, even though either would have been a relief).

By 9th grade it was apparent to all that I was not gifted scholastically, and the general consensus was that I was lazy, stupid at math, not trying hard enough, and acting up just to make her life difficult.  When she was drunk, my failures and interests and personality traits would be compared to her ex-husband’s, “you’re just like your father, the bastard”.  Even as much of a socially-clueless 14 year old that I was, I knew that these kinds of comments were untrue and inappropriate, and the problem was with her attitudes and her drinking.  But they still hurt, terribly.

I would not be diagnosed with ADHD, Auditory Processing Disorder, and Prosopagnosia until I was in my 40’s.  Such diagnosis hardly existed in those days; certainly my difficulties were not considered to be due to anything but my own personal failings.

No way, my family and school officials decided, could I be college material.  I could not keep track of my assignments, I still struggled to learn and remember my multiplication facts into 8th grade, and I flunked or barely passed classes.

Given my social difficulties and subsequent lack of dating, and even my utter lack of domestic abilities (mom warned me off taking a sewing class because doing so would “ruin my GPA” - grade point average), I was obviously not highly marriageable. This was the 1970s, and most people still thought along those lines — an astonishing number of girls went to college to “get their MRS”.

The goal then was to get me some kind of minimal trade training, so I would, as she fiercely reminded me many times, not be a burden on the family. It was made plain to me that once I graduated high school, and then later turned 18, I was to be out on my own.  I should not expect financial assistance from her.

So I was enrolled in typing, which was a miserable experience beyond the whole ordinary ordeal of learning to type on manual typewriters.  The room was a cacophony of noise.  The instructor was adamant about constant attention to task, proper posture, and graded with the intent on us producing perfection — as soon as a student produced a typographical error, then the score was made. (Additionally, the students’ pages were  held up to the light against her perfect copies to check centering and spacing). There were many days when I would produce an entire page that was otherwise perfect but for a typo in the second line, and my grade would be an F because I had such a low word-count.  Given my problems with developing manual speed, tracking text (near-point copying), attention, and transposing letters and numbers, I struggled to get a C grade.

But the clerical work that was deemed best for me also required taking bookkeeping.  Not surprisingly, this was also a very difficult class for me.  My aptitudes and interests were not really taken into consideration, because after all, even if writing and science and art were what I liked best, I had not done well in those classes, now had I?  Besides, clerical work was what my mother knew, so like many parents she expected me to follow occupational suit.

Unlike many such students, my story has a relatively happy ending.  I did manage to graduate high school, to everyone’s relief.  A year later, I even enrolled in an evening class at the local community college.  College classes were not easy, partly from my intrinsic difficulties, partly from not having the necessary study skills, and partly from not having a solid academic background.

But the glory of the American system is that such colleges provide opportunities for adults of all ages to acquire the these things, and to gain higher education. I worked hard, and slowly figuring out how I learned, which was not always in the ways that others thought I should study.  Sometimes I had to drop a class and re-try it later on, to finish it successfully. Later on in my 40’s I was to also get some of my issues diagnosed.

I now have a Master’s of Science. I teach college students.  No one would have expected this based upon my previous performance. (Employers who place near-complete trust in Behavioral-Based Interviewing, please note!)  And this point, amongst all the others about the perils of attribution errors, and learning disabilities, and dysfunctional families, this point is crucial:

A child’s future abilities cannot always be predicted,

when based upon their current abilities.

Many parents of children who have developmental disorders worry that their children will never be able to attend school, or finish school, or go on to college, or hold a job, or live on their own, or be loved by a partner, or have a family, or talk, or be potty-trained, or any number of milestones.  Just because the child cannot do the same things that their age peers can do, or are expected to do.

This is one of the biggest points of contention or discussion between the “autism community” (parents of autistic children) and the “autistic community” (children, teens and adults who are autistic, and many of whom are parents as well).  Even beyond the farcical assumptions that either community is monolithic with regards to attitudes and knowledge and politics et cetera, there are inherent issues that need to be mutually addressed.

One of the best resources for the autism communities are the autistic communities.  If parents go around just talking to other parents, especially those other parents who are consumed by the “Terrible Tragedy and Selfless Suffering Families” world-views, they may fall prey to this easy assumption:  If my child can’t do it now, he’ll never be able to do it, and our lives will be ruined.

Sure, not everyone takes it to that extreme.  Sure, there are a few children who do not achieve many of those life-goals.  But those lack of achievements does NOT automatically mean that their lives are ruined, or their families’ lives are ruined. They do NOT automatically mean that people cannot live relatively happy, healthy, and productive lives.

Please do NOT assume that not being able to use speech as a reliable means of communication is the same as not being able to think, or not being able to communicate, or not having anything to communicate.

Please do not assume that because a child does not learn in a traditional manner that they are learning “the wrong way”, or that they cannot learn at all, or that they must be taught “remedial learning lessons”.

Please do know that even when children have problems, and are slower to acquire skills, they are not doomed.

Please do not give up on them.

“Don’t talk to me like I’m an idiot.”

~First words (at age 35) of an autistic man [quote source]

I welcome you to please post comments, and more links to other positive blogs and sites. Kindly see the newly-updated “NOTES TO COMMENTERS” box in the top of the left sidebar for important information. Read the rest of this entry »

This post is for

Elizabeth McClung of the Screw Bronze! blog.

This beebalm flower struck me as being kinda goth-like in form, so I spiffed it up for you, because more is more.  Thinking of ye, gal, take care!

(a single red beebalm flower, accentuated with "gloom" highlighting)

(a single red beebalm flower, accentuated with "gloom" highlighting)

Mend the Link

A horrifying news story: a little boy in Florida kindergarten class was publicly humiliated and ostracized by his classmates, at the urging of their teacher.

After each classmate was allowed to say what they didn’t like about Barton’s 5-year-old son, Alex, his Morningside Elementary teacher Wendy Portillo said they were going to take a vote, Barton said.

By a 14 to 2 margin, the students voted Alex — who is in the process of being diagnosed with autism — out of the class.

There are so many ways to mistreat those who ought to belong somewhere. These means of intolerance, of expressing prejudice, range from the most passive to the most active. But even the passive ones are cruel when they are intended to be exclusionary. The outright active ones are the most vile.

You can be Read the rest of this entry »

One in the crowd

Look at all those honeybees, buzzing around the hive! One of them is named Kathleen. (Can you tell them apart? I sure can’t — they’re all sisters.) So where’s Kathleen? “Yoo-hoo! Which one of you is Kathleen?”

“I am Kathleen!”

“I am Kathleen!”

“I am Kathleen!”

“I am Kathleen!”

Expect to see a lot of blogging bees styling themselves as Kathleen, a la “I am Spartacus.” (Or check out the LOLcat by DKMNOW.)

Due to scholastic issues, I am late making this post. If you’ve not already heard, a blogger, Kathleen Seidel of the Neurodiversity.com weblog, was recently served with a subpoena by a lawyer in a current case. Kathleen has long blogged about the lack of scientific credibility of the vaccines-cause-autism idea, and the court case deals with such. As a citizen-journalist, Kathleen has commented upon this case and others like it, and her posts are copiously annotated with the supporting references from public domain documents. Other bloggers with legal backgrounds have commented that this kind of legal action seems to fall into the category of a “SLAPP”, Strategic Lawsuit Against Public Participation:

This form of litigation is frequently filed by organizations or individuals to intimidate and silence critics or opponents by burdening them with the cost of a legal defense so that they abandon their criticism or opposition.

Walter Olson of the Overlawyered blog calls the subpoena a “fishing expedition” and “intimidation”. Not only are the demands in the document incredibly broad and laboriously demanding, they are simply irrelevant to the case. Kathleen asserts that she is not involved in the case, and she does not have any special information relevant to the case.

As she stated in her reply (a “motion to quash”),

9. The subpoena commands production of “all documents pertaining to the setup, financing, running, research, maintaining the website http://www.neurodiversity.com” - including but not limited to material mentioning the plaintiffs - and the names of all persons “helping, paying or facilitating in any fashion” my endeavors. The subpoena demands bank statements, cancelled checks, donation records, tax returns, Freedom of Information Act requests, LexisNexis® and PACER usage records. The subpoena demands copies of all of my communications concerning any issue which is included on my website, including communications with representatives of the federal government, the pharmaceutical industry, advocacy groups, non-governmental organizations, political action groups, profit or non-profit entities, journals, editorial boards, scientific boards, academic boards, medical licensing boards, any “religious groups (Muslim or otherwise), or individuals with religious affiliations,” and any other “concerned individuals.”…

15 … Plaintiffs and their counsel seek not only to rummage through records that they suspect pertain to themselves, but also through my family’s bank records, tax returns, autism-related medical and educational records, and every communication concerning all of the issues to which I have devoted my attention and energy in recent years.

This is an incredible amount of documentation. Who would even keep all of these kinds of records? Many sorts of library searches do not give you “receipts”. And, as originally cited in the subpoena, what sort of search engine is “Lexus Nexus”, an automotive dealership? They probably mean LexisNexis(R), as Kathleen properly refers to it. (Spelling error or Freudian Slip?) And what’s with the “religious groups (Muslim or otherwise)”? Her religious affiliations (or lack thereof) have no bearing on the lawsuit.

The subpoena itself lists in those requested documents, “written or verbal communications” between her and a very, very long list of people or groups, which reading through is quite quickly apparent simply her blogroll, meaning all the 100+ blogs that she has links to on her sidebar. Mine is one of that large number, probably because my blog is listed in the Autism Hub feed. Mind you, I have never even mentioned anything about this particular court case on my blog.

So, disclosures: I have no special information about this court case, and I don’t even know any of the people involved. I don’t even know Kathleen personally, and have never met her. I do not work for her or for Neurodiversity.com, and have never even been to New Hampshire. I’ve probably made a few comments on her blog, as I’ve made comments on all sorts of blogs across the World Wide Web, but her blog is not listed on my blogroll. I do have a family member diagnosed with an ASD. I work in school settings with students who have various educational needs, including ASDs. I do not work for a law company, for a pharmaceutical company, or for a medical company.

Asking Kathleen for the least crumb of communication between herself and the numbers of people mentioned simply because they are on her blogroll is absolutly nutz. Can you imagine how many endless pages of paper all those requested documents would be? (What if you printed out every e-mail you had ever sent or received? Do you keep every e-mail you have ever sent or received? Neither do I.)

The responses to this action in the blogosphere have been incredible; big names like Pharyngula, Orac, and Steven Novella have taken time to comment upon action. Liz from I Speak of Dreams is keeping a running list. I too think the legal action is absurd.

One bee from the hive stops to turn over. Instead of being able to look at the viewer, she is displaying her underside, and we have a great shot of a bee’s ventral abdomen, essentially her rear end. Yeah, check out THAT waggle dance, folks.

Piss-poor platitudes

There’s something about the intersection of the loss of a child and thoughtlessness that produces a dreadful lot of dreadful platitudes. But your child doesn’t even have to die — finding out that your child has an incurable disease or disabling condition can result in more horrible platitudes.

Some people will protest that, “Well, they mean well, so it’s really okay.” No. When someone says something cruel, or does something rude to another person, their “good intentions” don’t really amount to a hill of beans. Even using treacly god-talk doesn’t sugar-coat the insensitive words enough to make them palatable.

Finding out that you will have to learn how to do many things differently due to chronic illness or major disability involves some initial sense of loss for expectations of how life would be. But the situation is not analogous to having a child die. The parents have not “lost a normal child”. The child is not dead, but very much alive, and still loved. Furthermore, the child would not be “better off dead”.

Sometimes people pull out the platitudes because they want to “make things better”. But a few saccharine words is not going to help. The death of a child cannot be healed by the verbal equivalent of a bandage on a cut finger. When at a loss for words at the magnitude of someone’s grief, it’s okay to be honest and share that, “Oh, I’m SO sorry. I hardly know what to say.” And if you can’t think of anything further, then share a hug if these are hugging people.

After the initial shock, share memories of the child with the grieving parents, rather than trying to make the social “problem” go away by ignoring it. Don’t suddenly drop the parents of disabled children from social groups, as though the family has contracted something horribly contagious.

But please, don’t pull out the insensitive platitudes:

Don’t be so selfish; you still have your other child.

You can always have another one.

Children are not interchangeable, replaceable units, like dolls.

Having another child won’t somehow magically make a family “complete” — the family isn’t defined by the number of members, but by who they are. There will always be a sense of loss for the missing person.

God wanted the child with him.

What kind of deity is so selfish as to deprive parents of their child? What, God couldn’t have enjoyed the child’s presence more by watching it grow up with its family?

God’s punishing you for putting your desire to have children ahead of Him.

Make that selfish and vengeful. Where’s the “loving deity”?

It was God’s Will.

And you know this because … how?

Your child’s in a better place.

How is an early death better than a full life?

God never gives people more than they can handle.

Nonsense; there are plenty of people who have cracked under the strain of grief, falling to depression or sometimes even violence.

Everything happens for a reason.

True, there are causes for everything. True, people can create extra purpose in their lives in reaction to events that happen to them. But I cannot accept that a deity required a child had to die for its parents’ moral improvement.

Think of the money you’ll save; having one kid is cheaper than twins.

Oh for ~~ one doesn’t have children for budgetary reasons!

Guess what — I’m pregnant! It’s like God’s making up for the baby you lost.

Let’s blame the maternity hormones for that incredibly tactless, thoughtless remark, and hope that she has a full recovery.

Haven’t you gotten over that yet? You just need to pray more / work harder / think about others.

Grieving for the death of a baby or child is not something over and done in a few days. Really, one grieves for the loss of a loved one the rest of their life — it’s just that the grief becomes tolerable, and the memories more wistful than painful.

You’re lucky the baby died early — it could have been handicapped.

Being disabled is not worse than death.

It’s for the best — she / he would have suffered from being, ‘you-know’ … Retarded. Crippled. Deaf. Blind. Palsied. (et cetera)

Being disabled is not a life sentence of suffering.

Well at least you have your other, healthy child(ren). You could even try again.

If I have a disabled child, I am not about to discard them, nor decide that I have not succeeded in getting the “perfect” child that I deserve.

God gave you a special child to teach you something.

We all learn things from our children, and many parents find they learn unexpected things from children who have different needs. But such a platitude smacks of begin given a special-needs child as a prescription or punishment for a moral failing.

It’s just as well; so many sick preemies survive nowadays, and there’s too many special-needs kids being a burden on society.

The social burden is not special-needs kids.

The social burden is people who feel they have some special hotline to heaven. The social burden is people who think that death and disability are divine punishment for sins. The social burden is people who can only see the disabled as those who are a useless waste of public resources. The social burden is people who imagine that a disabled person cannot have a happy, loving, productive or even [otherwise] healthy life.

Not so lucky

The other day at the college I was waiting for an elevator (lift). It’s rather slow, but a sleet storm was heading in and I was especially achy. Just a few feet away was a bulletin board for a program the college runs, including a series of non-credit weekend classes for people with Down’s and other developmental or cognitive disabilities. One of the things thumbtacked to the board was a yellowing newspaper clipping. The photograph showed a young man busy in his kitchen, with his father standing nearby, watching him. The article began by mentioning how lucky the young man is because he has resources to help him learn to live independently, to get his own apartment, to get a job to support himself, and other important things.

He is lucky.

“Lucky” is one of those stock newspaper words that seems to be required in stories about disabled people. It’s right up there with “amazing”, “inspiring”, “challenged”, “journey” and a dozen other terms that I’m blanking on just from sheer nausea factor. (I’m sure you can think of several others.) I finished reading the story by the time the elevator moseyed up to the top floor. By the time I descended three levels, I had gathered up a fair bit of annoyance. Read the rest of this entry »

A shot in the arm, A slight kick in the butt

Last week I took two of our cats to the vet for their annual check-ups, including the Rabies, Feline Distemper, and Feline Leukemia vaccines. Some years ago we lost one of our cats to Feline Leukemia; the poor kitty died just a few months before the vaccine was available.

This Saturday past I reminded my gardening students that if they cannot remember when they last had a Tetanus booster, they they should go and get one, because a booster is recommended every ten years. The number of people to have survived Tetanus is vanishingly small; it’s pretty much a death sentence. It’s also easily prevented by a simple vaccine. Sure, your arm is a bit sore for a couple of days, but that beats dying an extremely painful and highly unnecessary death. As I reminded my students, “You get your pets vaccinated, you get your children vaccinated, so you should get yourself vaccinated!”

Except there are a few people who don’t want to get their children vaccinated. A drop in vaccinations means not only that some people get sick, but a drop in vaccinations also means a loss of “herd immunity”, meaning that most of the population is not immune, so there are enough people who can catch and then transmit the disease. When you make a decision to not immunise, you are not making a decision that affects just you and your children. You are a making a decision that affects everyone else in your community.

That is why we had recent epidemics of mumps and measles in the UK and the US, leading to hundreds of sick people, and some who were disabled or killed. Because I work with students in various schools, I get lots of exposure to viruses. I had not previous had a mumps vaccine or the disease, so during those epidemics I went and got the MMR. Now I’m protected against Mumps, Measles and Rubella (even though I had the other vaccines in ‘63 and ‘70, the combined vax helps boost my immunity). I also went through the Hepatitis B series that year.

So yes, I’m a big proponent of vaccinations.

And no, I do not subscribe to the hysteria generated by a few noisy, well-meaning but seriously-deluded or paranoid people who believe that there is a world-wide conspiracy Read the rest of this entry »

Love Bug

I love a good debunking!  Bug Girl has an appropriately geeky and humorous  Skeptic’s Circle #80, “The Valentine Edition” going on over at her blog.  Go check it out!

Circus of the Spineless #29: Making A Living

It’s tough making a living, whether you’re finding a nursery for the young’uns, molting, trying to get a mate, or avoiding ending up as someone’s dinner. Part of the fascination with the invertebrates is just how many “weird” and surprising ways there are to solve the basic problems of life. Plus, we also like them just because they’re so damn gorgeous! This batch of posts has some terrific photography.

Ants may be industrious, but by all accounts they may be easily outwitted. On Not Exactly Rocket Science, Ed Yong has the great tale of “Evolutionary arms race turns ants into babysitters for Alcon blue butterflies”, giving the story of how the larvae of the beautiful Alcon Blue butterfly are really just a bunch of slackers — these brood parasites make ants fawn over them at the expense of the ants’ own larvae. Meanwhile, GrrlScientist is Living the Scientific Life where she describes, “Berry Butts: Parasitized Black Ants Resemble Red Berries”. More weird parasitism: “an amazing example of a parasite that causes its host to resemble a luscious red berry — all so the parasite’s eggs are passed onto birds, the next step in the parasite’s life cycle.” The ants continue their march (one by one) across the Interwebs, and at his Myrmecos Blog, Alex describes how we can find “Ants from a Kilometer Up” by using Google Earth to find their mounds. (Gee, if you make it that easy, won’t the grad students waste their time doing silly things like catching up on sleep?)

So what do Superman, strippers and training wheels have to do with arthropods? Read the rest of this entry »

OMG Teh LOLCats!

Wow, lotsa busy stuff happening over here!

Getting the Carnival of the Spineless knocked together (it’ll be out soon; ran into a technical glitch).

Meanwhile, if you’re aching for some good strategies or inspiration, go visit the January Pain-Blog Carnival at “How to Cope with Pain” blog. (This one happens during the last week of each month; the next one deals with pain & Valentine’s Day.)

Podblack Cat has put up the “The 79th Skeptic’s Circle - Rollin With Teh Lol-ling”. What a clever cat; she has linked to special LOLCat pix for each contributor! Too funny, plus, lots of great skeptical blogging.

And if you still have time to waste, go check out the Planarity game (hat-tip to the Kid). Starts out nice and easy, letting you figure out the untangling algorithms, and progresses reasonably. I got up to level 16, but found that much of anything past level 10 is really way too many nodes to make distinguishing or handling easy, so I just refresh at 10.

Time to Bug You All

The next Circus of the Spineless will be hosted HERE at the end of the month!  Deadline for submissions for CotS #29 is the 29th.

The Circus of the Spineless is “A monthly celebration of Insects, Arachnids, Molluscs, Crustaceans, Worms and most anything else that wiggles”.  So if you have a story, and especially if you have pictures, please join in the fun!

So far I have a whopping 2 submissions (I know, I know, “salvation by deadline” and all that), and they are both about ants.  Are the rest of you invertebrate fanciers going to let the Formicidae rule all?  (You know how those social insects are…)

You can post your links here in the comments, or via the CotS page linked above.

andrea

Sn*wed under

Sn*w day for the kids today.  Meanwhile, college classes have started, and colleges rarely shut down no matter what the weather.  That means I’m temporarily snowed under coming and going.  So bop on over to The Skeptical Surfer’s blog for very humorous Skeptics’ Circle #78: The “Still High From The Chelation” Edition. (And remember, don’t believe everything you read ::wink:: )

Bread and Circuses

Just a couple of quickies here while I’m busy preparing for some new classes.

Firstly, the 77th edition of the Skeptic’s Circle is up at WhiteCoat Underground, with a rather humorous post by PalMD, “The Overmedicalized Edition“. I love reading these circus posts because it’s a good way to find great new blogs!

Secondly, there’s the “December Pain-Blog Carnival” at the How to Cope With Pain blog, also run by a physician blogger.

And for the “bread” part of this post, here’s a recipe that was a big hit last week, home-made waffles! Yes, it’s a bit more work than buying the frozen sort and throwing them into the toaster, but I guarantee that these tasted a helluva lot better than the frozen sort. The guys couldn’t even tell they were gluten-free, THAT’S how good they were! (All the frozen GF waffles I’ve ever tried were as dry as Styrofoam.)

Because I’m an ADHD-forgetful sort of cook and clumsy and somewhat arthritic, this recipe comes with assorted tips, including some in case you’re not used to making home-made waffles. Read through directions for tips before cooking.

WONDERFUL WAFFLES (GLUTEN-FREE)

Special equipment: waffle iron, mixer to whip egg whites, and if you have one, a blender and a towel. If you don’t have a blender you can use the mixer, BUT beat the egg whites before mixing the other ingredients, so the beaters are clean and dry for the whites.

  1. Inspect the mixer and blender to ensure nothing has fallen into the bowl or pitcher, that the bottom is securely screwed onto the blender pitcher, and that you have the lid to the blender.
  2. Make sure you have all the ingredients on hand before you start cracking:
  3. 4 large eggs, separated
    1 ½ cups milk (360 ml)
    ¼ cup oil (60 ml)
    1 1/2 cups GF flour mix (about 150 g, depending upon blend)
    5 teaspoons baking powder (25 ml)
    1 tablespoon sugar (15 ml)
    1/2 teaspoon salt (2 ml)

  4. Find the no-stick spray to use on the waffle-iron plates, even if it’s supposed to be a “no-stick” surface. If you don’t have no-stick spray, pour a little vegetable oil into a drinking glass, and use a clean 1.5″ (4 cm) wide natural bristle or heat-resistant barbecuing brush, as synthetic bristles may melt or scrunch up — YCIHIKT (You Can Imagine How I Know That). I put the oil into a drinking glass so I can stand the brush upright in the glass, rather than having it constantly fall off the edge of the wee bowl of oil, thus making another mess for me to clean off the counter.
  5. Clear some space on the kitchen counter, and plug in the waffle iron for it to heat up while you’re doing the mixing. The plates should be shut while it’s heating, for safety and efficiency.
  6. Crack 4 eggs, separating them into yolks and whites. The yolks go into the blender, and the whites go into the mixer bowl. Fresher eggs have “bouncier” yolks and separate more easily (just so you know; it’s not like you’re really going to have both fresher eggs and older eggs sitting around). Eggs will crack in half more easily and neatly if you knock them on a sharp, thin edge (table knife) than a wide, blunt edge (rimmed bowl). TIP: if this is an iffy task for you, then crack each egg over a small (separate) bowl so you can fish out the bits of shell before adding to the other yolks and whites. There are also egg-separater gizmos one can purchase — get one that you do not have to hold onto to use.
  7. Use the mixer to whip egg whites to soft peaks. I like my KitchenAid stand-mixer because it can do its own thing without me holding the mixer up in the air (vibration is hard on my joints). Yes, the beast cost more, but it has outlasted three hand-mixers, and it kneads dough, too! It’s worth buying something like this because it enables more cookery.
  8. Use blender to mix the milk, oil, egg yolks, and dry ingredients. If you put the wet ingredients into the blender before the dry ingredients, the batter is less likely to end lumpy. I still have to stop and scrape powder off the top edges once during the blending, but that’s pretty minor. TIP: to reduce the awful blender racket, put a folded towel between the blender bottom and the countertop; this reduces the cabinet-as-acoustic-chamber for the motor vibration.
  9. [Remove the mixer bowl from the stand.] Pour batter from the blender down the side of the mixer bowl so it slides underneath the egg whites. Tilt the bowl to a comfortable angle, and use a rubber spatula or spoon to fold the ingredients together. “Fold” means to stir the ingredients together slowly and gently in vertical circles; the batter will have the consistency of almost-melted ice cream.
  10. Spray both plates of the waffle iron with no-stick spray just before pouring in the batter. Re-spray before cooking each waffle. Even if your waffle iron is so miraculously non-stick that you didn’t need to do this for traditional waffles, you will need to do it for GF waffles; YCIHIKT.
  11. This is enough batter to make several waffles. Pour in just enough batter to fill the bottom plate, and then wait several seconds for bubbles to start forming before closing down the top plate. This allows the batter to partially “set” so you won’t have a bunch of goo oozing off the edges that will have to be scraped off later on; YCIHIKT.
  12. Bake until the signal light shuts off (if your iron has one) or until the waffles are appropriately crispy. TIP: our family likes to warm up the syrup(s) so the waffles don’t cool as fast while we’re eating them.

You can also sprinkle some cinnamon into the waffle batter, which is nice if you are topping them with apple stuff. Some people like to add a teaspoon (5 ml) of vanilla extract; I keep forgetting to do this. I’ve also tried almond extract, which made the waffles taste like holiday cookies, but hubby prefered traditional waffles.

TIP: if you want to add blueberries to your batter, use either fresh ones or still-frozen berries — thawed blueberries will “bleed” and turn the batter a pale teal-green color; YCIHIKT. They still taste good, but …

The Bee That Roared

I’m quite flattered to have received the “Roar for Powerful Words” Award from abfh. This award, initiated by the Shameless Lions Writing Circle, is to “encourage and celebrate good, powerful writing on the Internet / blogosphere”. It is given to “those people who have blogs we love, can’t live without, where we think the writing is good and powerful.” Each person giving the award then gets to select “three things they believe are necessary to make writing good and powerful” and nominate five deserving people. You’ll need to visit abfh’s blog, Whose Planet Is It Anyway? to read her own descriptions of good and powerful writing, and to learn of her other nominees.

For my own qualifiers, I believe that good, powerful writing originates from someone who is authentic to their own experiences, is clear on their own vision for what the world should be like, and is both thoughtful and articulate in expressing these things.

All of these bloggers have ATTITUDE. There’s not a “compliant”, unduly self-abnegating wallflower amongst them, bless their wicked little souls. They have words and they know how to use them, both the four-letter kind and the four-syllable kind. A thoroughly diverse group of bloggers, each has a different perspective on their particular interests. If you’re not familiar with them, I suggest reading a couple weeks’ worth of posts, to get a good feel for the subjects covered (none of these people are shy about posting a rant now and then, but rants don’t a blog make).

In alphabetical order (because otherwise trying to organise this bunch would prolly be like herding cats):

 

Cilla Sluga at Big Noise

Ms. Crip Chick

Joel Smith at NTs Are Weird

Shiva at Biodiverse Resistance

Wheelchair Dancer

You folks ROCK!

 

DISABILITY BLOG CARNIVAL: A Few of Our Favorite Things

 

Description: a photo of part of my desktop, a faux-oak surface with several items lined up along the back edge, (left to right) a clear green plastic desk lamp; a piece of mirror glass on the desk holding the quartet of a green-swirled globe of art glass from Scotland, a faceted crystal, and a small green beaded keepsake tin, and a purple glass tray with green beach glass from the North sea and pieces of granite from Loch Ness; a green glass bottle; several clear green plastic desk accessories including a stapler, tape dispenser, page holder, a tool caddy with green scissors and pens and suchlike, and in front of these is an electric mug-warmer with an old mug bearing the inscription, “SAVE THE EARTH (IT’S THE ONLY PLANET WITH CHOCOLATE)”. The photo has the post title added in the blank area near the top that reads, “A FEW OF OUR FAVORITE THINGS”.

As you may have guessed, shiny or clear green objects are some of my favorite things. This photo doesn’t even show the prismatic green tissue box, photo frame, green fidget-widgits, or Rosie’s habitat with the green lid. Having these things on my desk to use and admire makes me happy. (And that is the mug-warmer I mentioned in my own post on favorite things.)

We all have a number of little things that not only delight us in small ways, but also make life just so much more pleasant, and even help reduce our stress loads. These tend to fall into three categories: technology that enables us to do things, creature comforts, and human interaction. Got your cuppa? Cats and dogs settled down? Then let’s begin! Read the rest of this entry »

All in the family

Sometimes after a child gets a diagnosis (or diagnoses) the parents begin to realise many of the same issues from their own childhoods, and on through adulthood. In our family it took the opposite route. It took years to really see the aspie qualities of my kid, partly from unfamiliarity, and partly because in a geeky family like ours … most of those qualities are “normal”. Not until the teen years did the social issues, the APD issues, and ADHD-related educational issues really become unavoidable. The tics went away after several years, as happens sometimes. But I think there was less “denial” as there was unawareness and a sense of internal normalcy: “this is just the way we are”.

A very nice article by Benedict Carey illustrates this: Your Child’s Disorder May Be Yours, Too

Mr. Schwarz, a software developer in Framingham, Mass., found in his son’s diagnosis a new language to understand his own life. His sensitivities when growing up to loud noises and bright light, his own diffidence through school, his parents’ and grandparents’ special intellectual skills — all echoed through his and Jeremy’s behavior, like some ancient rhythm.

His son’s diagnosis, Mr. Schwarz said, “provided a frame in which a whole bunch of seemingly unrelated aspects of my own life growing up fit together for the first time.”

It can alter the present, too, if parent and child have enough common ground. Mr. Schwarz, the software developer in Framingham, said he became in some ways like a translator for his son, who’s now 16.

“I think there are a lot of parents of kids with these diagnoses who have at least a little bit of the traits their kids have,” Mr. Schwarz said. “But because of the stigma this society places on anything associated with disability, they’re inhibited from embracing that part of themselves and fully leveraging it to help their kids.”

Our understanding of diagnoses mean changes over time, and we leave or entirely skip that stage of grieving over not having a promised “normal” child, or possibly even viewing the issues as horrible things that must be cured at all costs. Instead, we find that our children are different rather than damaged, and that we ourselves are oft times different as well. We move from grief to acceptance, and realise that acceptance is not the same thing as resignation.

In fact, we do not have children with broken wings, but we are in many ways flocks of different kinds of birds, not unlike the diversity of finches that Darwin found in the Galápagos, all adapted for slightly different niches. After all, we don’t all need to be penguins attired in identical tuxedos.

Cross-Cultural Communiques

David recently posted the following conundrum in an essay:

How do you best convey experiences of living with a disability that are so alien to so many people? Where do you start? How do you convey challenges that people have never even considered?

This insightful — and sometimes “incite-ful” post, because it made me thoroughly annoyed on people’s behalf — reminded me of a handout I’d found while cleaning out old files. One of many available to university tutors, it was yet another authorless 12-point gem. (If someone does know the source, kindly let me know!)

The page refers to the assumptions we mentally trip over when working with people from other national, religious or ethnic cultures. I rather doubt that the author(s) considered how broad the cultural spectrum can be. One doesn’t readily think of the various Deaf cultures, but of course, there they are. I’m almost certain that they were not thinking of disabled people. Good heavens, even people studying various aspects of disability politics and history can’t agree on whether there is a “disability culture” or what it’s comprised of. Given the vast differences, definitions quickly break down into things like “autistic subculture” and debates thereof.

But nonetheless, this is still a spiffy list, so I’m sharing it with you all to mull over and run off with for your own purposes. This is the delight of blogging: cross-pollinating one’s brain with all sorts of novel combinations of ideas!

Cross-Cultural Relationships

1. What seems to be logical, sensible, important, and reasonable to a person in one culture may seem stupid, irrational, and unimportant to an outsider.

2. Feelings of apprehension, loneliness, and/or lack of confidence are common when visiting another culture.

3. When people talk about other cultures, they tend to describe the differences and not the similarities.

4. Differences between cultures generally are seen as threatening and described in negative terms.

5. Personal observations and reports of other cultures should be regarded with a great deal of skepticism.

6. One should make up one’s own mind about another culture and not rely on the reports and experiences of others.

7. It requires experience as well as study to understand the many subtleties of another culture.

8. Understanding another culture is a continues and not a discrete process.

9. Stereotyping probably is inevitable in the absence of frequent contact or study.

10. The feeling which people have for their own language is not often evidenct until they encounter another language.

11. People often feel that their own language is far superior to other languages.

12. It probably is necessary to know the language of foreign culture to understand the culture in depth.

 

Liberation by Disability: the paradox of Competency and Inclusion

“Because there is no way for good people to admit just how bloody uncomfortable they are with us, they distance themselves from their fears by devising new ways to erase us from the human landscape, all the while deluding themselves that it is for our benefit.”
~Cheryl Marie Wade

Disability is usually defined by what a person cannot do. But outside of the normative social realm, disability is really about how a person does things differently.

Within the cultural status quo, the onus of being “acceptable” for consideration to being included by others, is placed upon the person in question, rather than by those who are creating the standards and are choosing to accept or not. Frequently, inclusion must be “earned” by first Read the rest of this entry »

It was a dark and stormy night …

and it continues to be a dark and stormy day, at least in my corner of the planet.  What a great day to stay home cozied up with a pot of tea and do some blog reading and writing.

But instead, this afternoon I need to throw on my rain cloak and venture forth to teach a class, and run some errands (tarantula needs crickets, cats need catnip).  I’ll probably get around to some blogging later on.  Meanwhile, you all should check out Disability Blog Carnival #24:  the 1st Anniversary Edition!

The deadline is in just a few days!

We all have our very favorite blogs, those that we make a point to read even if we don’t have time to read much else before going to breakfast, during lunch or whenever we do our online reading time.  We love these blogs because the writers provoke thought, because they introduce us to news or ideas we weren’t aware of, because they entertain us, because they are able to express shared opinions or experiences in a way that create commonality among diverse people, or any number of other attributes.

Well now is the time for giving those bloggers your kudos!  Nominate them for the Blogger’s Choice Awards!   (boldface mine)

Not only can you nominate your favorite blogs within a slew of unique categories but you can also vote and comment on others that have already been submitted. In turn, others can also vote and comment on the blogs you’ve nominated. Votes will be displayed on the site in real-time, so you can see who’s leading within each category at any moment! The voting for Blogger’s Choice Awards 2007 will end at 11:55pm on October 19.

Not sure which for category your blogger qualifies? (After all, I don’t see categories for “Best Science Blog” or “Best Advocacy Blog”.  Hmn, we should probably make a noise to the peeps* to include those next year.)  Make a comment on a recent post and ask them, because readers’ votes need to be concentrated to a category for the blogger to be awarded.

Here’s the rules.

*  mail to:  info@bloggerschoiceawards.com   subect = Question about Bloggers Choice Awards

How and Why

ABFH composed a new blogging meme, which unlike many that are transmitted by assigned infection, is open for anyone to self-select. I thought her questions to be rather interesting, as the overall topic of “how and why one blogs” is something that I myself have contemplated upon occasion.

1. Is there a regular time of day when you compose your posts? Read the rest of this entry »

Go up to BATT

It’s BATT – Blogging Against The Telethon day over at Kara’s Place, and like any other self-respecting bee, I’m swarming with the other bloggers. Go check it out!

(while I sit here and try to figure out why my toolbar is in Russian…)

Animal Farm

Yes, that “Animal Farm”, the book by George Orwell. That’s what I was reminded of, or rather, I was reminded of the famous quote, “All animals are equal, but some animals are more equal than others.”

Painting walls certainly gives one time to think, and I was stuck on the annual Muscular Dystrophy Telethon. Jerry Lewis is the comic who for years has been the host of the annual MD Telethon broadcast on US television. The program itself is designed to be a real tear-jerker, prompting people to send in money out of pity and guilt and good intentions. Lots of people hate the program. We hate the paternalistic attitudes that perpetuate the whole medical model of disability, and reinforce the warped picture the equates disabled people as helpless, hopeless victims needing cures and charity, rather than accommodation and equal social standing and social rights.

In the negatively stereotypical telethon world, the disabled person can only be brave by quietly clinging to others and not advocating for themselves, by staying hidden out the way and not asking for equal access, and by cultivating “hope” that someday they can be “cured” to become normal, thus regaining their status as a full member of society and become a real person.

Well, medical cures and preventions are well and good, but are nowhere near soon, and what people really need are more practical things, the equipment and accommodations and acceptance into general society that will let them live their lives. No one wants to put their life on “hold” waiting for some possibly non-existent, or distant future mythical-magical cure. No one wants to be stuck at home, much less in an institution, and thought of as a horrible burden, a non-functioning person who has nothing to contribute to their family, a non-working person who has nothing to contribute to their workplace, a non-sexual person who has nothing to contribute to their spouse, or a non-adult person who has nothing to contribute to their children.

Jerry Lewis plays up the pity card heavily. I’ve previously discussed the various social problems created by pity, so I won’t go repeating myself on that score. What choked me up (in disgust, not in sadness) was his “half a person” quote. It originates from the September 2, 1990 issue of Parade magazine, from the article titled, “What If I Had Muscular Dystrophy?”:

When I sit back and think a little more rationally, I realize my life is half, so I must learn to do things halfway. I just have to learn to try to be good at being a half a person … and get on with my life.

Ick. That’s when the Animal Farm parallel hit me:

All humans are people, but some humans are more people than others.

Half a person. Not a real person. Not a full citizen in society, but someone second-class. Forever dependent, focused upon all the things they cannot do, always left out. And why are people left out? Not because they’re disabled, but because of the entrenched bigotry against disabled people that permeates our cultures. Simple things that should be ordinary, practical, sensible things, are instead viewed as horrible hardships upon everyone else. Problems are seen in a warped world-view of false dichotomies: either the person cannot do something the normal way, or they get cured and then they’ll be able to do things. There’s no accommodated way of doing things in that unrealistic story.

I can’t stand to watch the program. I can’t stand the crass exploitation, seeing children (and their families) used as tragi-cute pawns for pathos. I can’t stand to hear Jerry Lewis snivelling. I can’t stand to see the whole routine repeated year after year after year, the horribly treacly music, the pleas to “save Jerry’s kids”. The program is a tear-jerker, and Jerry Lewis is a jerk.

“It is an uncomfortable truth, in social work, in government activity, and in charitable endeavors, that actions which are intended to help a certain group of people may actually harm them.”
~Laura Hershey

New tools you didn’t even know you needed!

For all of the philosophic ruminating about words and language and the uses of signifiers, there is yet a power to creating words, to naming things. Once we create a word, we now have yet another handy mental place-maker for retrieving that information. Once we create a word, we can share it with other people, thus giving ourselves a tool for introducing ideas and discussing them. Naming is a kind of power, for it can help create something de novo, and “give flesh” to nascent ideas.

When we find or create and use words, we can spread these new ideas and discuss them. Just as disciplines need their specialised jargon, and new disciplines need new specialised jargon, other fields of human endeavour need their jargon. Although the jargon of a group can be used badly to outgroup, it can also be used constructively to serve as a tool for unifying dissimilar people and sharing ideas, and it can also “legitimise” groups by giving them something of a more “real” or “solid” presence.

Sometimes I make up words because they don’t exist, but I still need them. Frequently I borrow somewhat obscure words from various disciplines. And sometimes people borrow words from other languages. One of my favourite word-nerd books is, They have a word for it: a lighthearted lexicon of untranslatable words & phrases by Howard Rheingold.

As we endeavour to create new paradigms in the world, we need extra tools and new tools in our toolboxes. So here’s my first installment for you (I’ll add some words of my own eventually-soon). Here’s a list of words you didn’t even know you needed, many with my own (necessarily briefer) definitions, and my own pronunciations: Read the rest of this entry »

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